Raising rare disease awareness using red flags, role play simulation and patient educators: results of a novel educational workshop on Raynaud phenomenon and systemic sclerosis

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S. Sanges, M.-M. Farhat, M. Assaraf, J. Galland, E. Riviere, C. Roubille, M. Lambert, C. Yelnik, H. Maillard, V. Sobanski, …

Orphanet Journal of Rare Diseases, Vol.15(1)

23/06/2020

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Title: Raising rare disease awareness using red flags, role play simulation and patient educators: results of a novel educational workshop on Raynaud phenomenon and systemic sclerosis
Creators - without role: S. Sanges - Centre Hospitalier Universitaire de Lille
M.-M. Farhat - Lille Inflammation Research International Center
M. Assaraf - Centre Hospitalier Universitaire de Lille
J. Galland - Hôpital Lariboisière
E. Riviere - Centre Hospitalier Universitaire de Bordeaux
C. Roubille - Université de Montpellier, Physiologie et Médecine Expérimentale du coeur et des muscles - PhyMedExp
M. Lambert - Lille Inflammation Research International Center
C. Yelnik - Institute for Translational Research in Inflammation
H. Maillard - Centre Hospitalier Universitaire de Lille
V. Sobanski - Institute for Translational Research in Inflammation
G. Lefevre - Lille Inflammation Research International Center
D. Launay - Institute for Translational Research in Inflammation
S. Morell-Dubois - Centre Oscar Lambret
E. Hachulla - Centre Hospitalier Universitaire de Lille
Publication Details: Orphanet Journal of Rare Diseases, Vol.15(1)
Identifiers: 9941581509311
Academic Unit: Physiologie et Médecine Expérimentale du coeur et des muscles - PhyMedExp
Language: English
Resource Type: Journal article
Local Fields: hal-02880743