Résumé
In April 2025, the first-ever science-family symposium on Familial Acute Necrotizing Encephalopathy (ANE1) was hosted in Montpellier with funding from the ANRS-MIE (Emerging Infectious Diseases), the Institut de Recherche en Infectiologie (IRIM), the Université de Montpellier, and the Société française de virologie. The aim of the two-day meeting, co-organised by Nathalie Arhel (IRIM, Université de Montpellier, CNRS) and Kim Smith (ANE-International), was to connect families, doctors and scientists, to raise awareness and accelerate research.