Résumé
Profound Intellectual and Multiple Disabilities (PIMD) are complex disabilities that impact motor, perceptual and cognitive functions, including communication skills. When communication is impaired, the implementation of Alternative and Augmentative Communication (AAC), which is the set of means allowing to complete or replace oral language, is essential. The stakes of this AAC are considerable, especially for children with PIMD who are deprived of their fundamental right to communicate. However, in order to hope for a successful implementation of AAC, it is elementary that all the child's communication partners exchange regularly and create a real collaboration. Through our study, we wished to question the nature of this collaboration as well as the needs of families, speech language therapists and medical and social establishment managers with regard to the communication aspect of the care of children with PIMD. Therefore, we designed three questionnaires: one specifically for families, one for speech therapists and one for managers. The questions were identical but worded differently in order to compare the answers while facilitating the reading and understanding of each. 404 responses were retained (151 from families, 140 from speech language therapists and 113 from managers) and analyzed. The results show that the feelings of families, speech therapists and managers regarding this collaboration are significantly different, that information between families and professionals could be communicated in a more optimal way, that there is a lack of knowledge about the care of the communication of children with PIMD, and that professionals and families would like more time to set up a quality collaboration.