Résumé
Background: Despite the high satisfaction rate regarding the efficacy of spondyloarthritis (SpA) treatment on clinical symptoms and function during the biologic era, physicians often overlook other aspects of daily life that are greatly affected by SpA. While there is an increased focus on research, the systematic utilization of Quality of Life (QoL) instruments in clinical practice remains limited.Objective. To address this, we developed SpA Disk©, a simple yet thorough tool that addresses the impact of SpA on the most relevant aspects of daily life.Methods: SpA Disk© was developed through a comprehensive and rigorous process, including an extensive literature review of online databases containing existing Patient-Reported Outcomes (PROs) and QoL questionnaires. Surveys were then distributed to patients through patient associations, aiming for active patient participation in ranking/rating proposed items based on their perceived impact on QoL. The preliminary version of the questionnaire was created by a SpA Disk© group comprising 30 expert rheumatologists in SpA, three of whom were therapeutic education specialists and one sexologist. The validation process by experts in spondyloarthritis led to the final version of SpA Disk© in French, which was subsequently translated into English.Results: Following five rounds of voting, the final SpA Disk© comprises 13 items presented in the form of a scoring disk-shaped numerical scale ranging from 0 (absolutely disagree/No impact) to 10 (absolutely agree/major impact) over a 30-day time period. The questionnaire includes an explanatory statement and keywords specifying the application field of each item (Fig. 1).Conclusion: SpA Disk© is an easily administered, concise, comprehensive, and self-reported tool encompassing all crucial aspects of SpA-related disability in patients. It offers a visual representation of this burden for physicians during patient visits and in the outpatient setting. A digital version of the SpA Disk© is currently in development.